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NEW

The video for the Raynaud’s in Systemic Sclerosis in available for viewing.

Click Here

 


Virtual Scleroderma Yoga

Tuesdays  Chair Yoga
Thursdays Easy Flow Yoga

 

More information and registration: CLICK HERE

 


Virtual Community Connections – Various Topics and Discussions

Date : Monthly Time : 7 :00 – 8 :00pm Vancouver Time

 


 

Join the National Scleroderma Association’s Caregiver Support Group

Hosted on Zoom: 4pm Pacific Time, monthly on the fourth Thursday.

Click Here for more information 

 

The 20%: A Virtual Support Group for Males Living with Scleroderma

Hosted on Zoom: 4pm Pacific Time, on the fourth Wednesday of each month

Click Here for more information 

 

Virtual Support Groups are hosted by:

National Scleroderma Foundation


 

What is Scleroderma?

Scleroderma (systemic sclerosis or SSC) is a little known and incurable autoimmune disease, a condition in which a person’s immune system turns against itself by producing antibodies that attack its own tissues (i.e. autoantibodies).

Scleroderma affects approximately 2,300 people living in BC and 22,000 Canadians. Scleroderma is characterized by an overproduction of collagen and damage to the blood vessels that causes excessive scarring within the various organs.  This imbalance leads to a hardening of the skin (fibrosis) and an alteration of the affected organs. Moreover, in most cases, scleroderma limits the motor skills and dexterity of those affected and causes great physical and psychological suffering since it produces disfiguring appearance-related changes.

The skin, digestive system, heart, lungs, and kidneys are the organs most commonly affected by the potentially serious complications of scleroderma, which leads to significant decrease in quality of life and life expectancy. Read more

 

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Last updated : 2023 Dec 15


 

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