Overview
About Us
Clinic
Events/Updates
Fundraisers
Membership
Worth Reading
Contact
Donate Now Through CanadaHelps.org!
 
 
 
Events & Updates

 

Scleroderma Society of Canada/Canadian Scleroderma Research Group Annual Meeting October 28-29, 2011 in Quebec City

Click here for The Program

3rd Annual Community & Patient Fair for Health Professional Education November 2nd, 2011

 


 

27th Annual Scleroderma Conference & Annual General Meeting

The SABC hosted 45 attendees at the annual meeting on June 4th at the Delta Town & Country Inn. We were able to welcome visitors from as far afield as Terrace, Nelson and Vancouver Island. The Friday evening social was greatly enjoyed by those in attendance.

Once again Dr. Dhar and Mrs. Dhanda have generously supplemented the annual awards dedicated in memory of Gurmej Dhanda. Dr. Ada Man was chosen by Dr. Kam Shojania, Chief of the Rheumatology Dept. at UBC as a most deserving recipient of the $2000 scholarship. Dr. Dunne's selection for the $5000 research award was presented to the Pacific Lung Health Centre, and accepted by Fran Schooley on behalf of the combined clinics at St. Paul's Hospital. The award will help in the updating of their database, and clinical research will proceed on treatment, outcomes and survival in scleroderma-related lung disease.

The 2011 SSC/Canadian Scleroderma Research Group Conference will take place in Quebec City, October 28-29, 2011 as part of a larger Conference, October 25-30. Details at: www.scleroderma.ca . (This conference may be hosted in BC in 2012. If so, the SABC will participate with its organization.) The 2nd Systemic Sclerosis World Conference will take place in Madrid, Spain, February 2-4, 2012. This exceptional international event aims to update patients and professionals on developments in SSc research, clinical problem solving, young investigator activities and networking between health professionals and patients. Details at: www.aimgroupinternational.com/2012/sclerosiscongress/ Election Notes: For the 2011/2012 term, Board members Yvette Betz, Leta McCallum, Priscilla Stanbury & Vivian Skrepnechuk reluctantly declined nomination. Their past service was acknowledged with warm applause. We thank Bob, Joan, Robyn, Joanne, Elaine, Yvonne, Dianne and Jeannette for continuing to serve, and are delighted to welcome Nadine Morton, Tom Mueller and Melissa Patton to the Board.

An exceptional group of speakers shared their expertise with attendees. Mike Campagne's workshop on Taxation & Disability Benefits was much appreciated. Details on disability tax rules and regulations can be found at www.cra-arc.gc.ca/disability.

Treatment Options for the Hand in Scleroderma, Dr. Thomas Goetz' thorough presentation, was especially relevant to our members suffering from Raynaud's, calcinosis, and digital ulcerations. Early intervention is the key – please see our "Clinic" page for helpful information.

Dr. Allen Lehman is associated with the Arthritis Centre of Canada (info at www.arthritisresearch.ca) which includes scleroderma within its parameters. His topic, Arthritis: A Family Affair struck a chord with those in attendance, as scleroderma almost always impacts family responsibilities and relationships, employment and social activities.

Presenter Linda Schaumleffel touched and inspired everyone with Nick's Story, and the power that a positive frame of mind can have when dealing with adversity.

Please visit our "Worth Reading" page to read the Annual Directors' Report to the AGM.

 



 

SPENCER SKATE FOR SCLERODERMA
April 3rd, 2011


The 7th annual Spencer Skate for Scleroderma was held on April 3rd at the Forum rink in Richmond, BC. Once again there was a lot of activity, a lot of fun and laughter, balloons and clever face-paintings… altogether another successful, enjoyable event.

Denise Kostash presents 1st prize to Melanie Rak

(that’s not Malcolm in the Middle)
Josee Westover
2nd prize for the second time in two skates.
Kris Johnson, 3rd Prize winner hugs Melanie and Denise. Leanne Garcia, clever creator of our skate history in pictures.

Our thanks to Dianne McPhee for providing the ‘prize packets’ for the young ones and to Denise Kostash and the Sandman Hotel Group for providing the top two Pledge Prizes

  • 1st prize, an overnight at the Sandman at Davie Street, along with a $25 spa certificate, and won by Troy Ross.
  • 2nd prize was for the Sandman City Centre, won by young Josee Westover who was celebrating her first year with us with her very own skates.
  • 3rd Pledge prize - a Medi-Pedi Foot Treatment certificate, was awarded to Kris Johnson, with our thanks to Melanie Rak, RN, for her contribution.

Thanks also to Mary Laanela of Nanaimo for her lovely craft prize contributions to many of our events! Leanne Garcia was awarded a gift certificate to Red Robin for her contribution over several years, of clever mosaics created from an array of photographs from each of the Skates. Grant Dustin received an SABC golf shirt as supporter attending from farthest afield.

Looking forward to seeing you all again next year! We’d surely appreciate you all spreading word of the Skate whenever, wherever you can, helping a popular event’s attendance grow.


 
  © 2008. Scleroderma Association for British Columbia. All Rights Reserved. Site Hosted by NetClimber