To donate to SABC or any of our Events please CLICK HERE
WE ARE IN THE PROCESSING OF UPDATING OUR WEBSITE, STAY TUNED!!!
SAVE THESE DATES!
North Vancouver Scotiabank Community "HOT DOG" DAY
Friday May 31st
11am - 4pm Scotiabank, Lonsdale branch - 1357 Lonsdale Ave. @ 14th St. North Vancouver.
Come by and show your support for this fundraising and our scleroderma awareness promoting event with SABC.
Organizer: Rosanne Queen 604.984.9425 or email@example.com
8TH Annual Scleroderma Ride for Research, Vancouver
Sunday June 16th
Ceperley Picnic Site in Stanley Park. There is a 10km ride/walk around the seawall and a 30km ride up to UBC and through the downtown or just come around 11:30am and join us for pot luck lunch.
Organizer: Rosanne Queen 604-984-9425 firstname.lastname@example.org Please contact Rosanne directly if you would like to join the event.
2nd Annual Walk in the Park, Victoria
Sunday June 23rd
Join us at West Shore Parks and Recreation Picnic Shelter on the Lower Field.
Please join Vancouver Island Scleroderma patients and supporters, for this event, with registration, and coffee and snacks donated by Tim Horton’s starting at 9:30 am.
Your choice of a 2.5 or 5 km walk on a beautiful, well groomed trail will begin at 10:30. Colwood Firefighter will again provide hot dogs by donation after the walk. There will be face painting, and a silent auction this year.
Organizer: Linda Barnes 250.380.9794 or email@example.com
3rd Annual Walk for Scleroderma, Valemount
Saturday June 29th
Join us at Centennial Park – 5th Ave Valemount BC. Registration at 10:00
At 11:00, we will start with speeches and then warm up with Yoga. After yoga, we will start walking 2.5 km on the Bigfoot Trail. Afterwards, we will gather back for a wonderful potluck lunch. There will be a bake sale table, face painting and games/music for children.
Organizer: Teressa Colosimo 250-566-4172 firstname.lastname@example.org
SABC 35th Annual General Meeting and Conference
SABC will be holding its Annual General Meeting and Conference on Saturday, October 5, 2019 in Port Coquitlam, BC.
It will be held at the POCO Inn & Conference Center at 1545 Lougheed Highway in Port Coquitlam.
We invite and encourage you to join us for this annual opportunity to enjoy the company of others, to learn and to share information and ideas. Join us Friday night to ‘meet and greet’ conference attendees from all over BC. New this year, we are planning to incorporate the option of real-time, online streaming, ensuring those unable to travel to the lower mainland have access to and can partake in, the conference featuring informative speakers on a variety of topics relevant to scleroderma.
Registration will be available in August!
TO DONATE TO SABC Click HERE
The Scleroderma Association of BC (SABC) serves as a support for scleroderma patients and their families, including those who are also affected by other related diseases such as pulmonary arterial hypertension (PAH). Virtually all persons with scleroderma have some loss of lung function, often in the form of pulmonary fibrosis and/or systemic scleroderma-associated PAH (SSc-PAH). SSc-PAH can be very severe in patients affected by this progressive connective tissue disease.
SABC advocates for the scleroderma community across the province and is committed to promoting disease awareness and improving the quality of life for all patients, including those with SSc-PAH. Through advocacy, we aim to raise public awareness and rally support around the issues affecting the scleroderma community to ensure our voice is heard and needs are met by government decision-makers.
One of these issues is ensuring that our community has publicly funded access to all new and existing treatments—including those in BC who are living with SSc-PAH. To date, over 85% of Canadians now have publicly funded access to Uptravi (selexipag) for the treatment of PAH (including SSc-PAH). However, patients living in BC are still waiting for our government to provide the same access to this potentially life-extending treatment option.
Lend your voice and visit www.takeactionPAH.ca to take action!
SABC has had an amazingly successful June Scleroderma Awareness Month. With three events across the Province, SABC presented a cheque for $52,556.53 to the St. Paul's Foundation for research being done through the Scleroderma Clinic. Valemount’s 2nd annual walk raised $2,153.83, Victoria’s inaugural walk raised $8,803.15 and the 7th Annual Scleroderma Ride for Research contributed $41,600.
This amazing support will allow the researchers to aid in the understanding of molecular pathways responsible for Raynaud’s, calcinosis, other forms of skin damage and lung damage in scleroderma. (Stay tuned this could be huge.) With your support and the dedication of the researchers, we believe this study is a strong step on the path leading to our ultimate goal - finding a CURE.