PULMONARY FIBROSIS SUPPORT GROUP
WHAT- HAVE YOU BEEN DIAGNOSED WITH PULMONARY FIBROSIS OF ANY KIND???
WHERE- JOIN US AT ST. PAUL’S – 4TH FLOOR –CAFETERIA MEETING ROOM 1-2
1:00 – 2:00pm MEET WITH OTHER PEOPLE LIKE YOURSELF - MILD, MODERATE OR SEVERE LEVELS OF THE DISEASE
2:00- 3:00 SPEAKERS ARRANGED
3:00 – 3:30 QUESTIONS, MIX AND MEET
MARCH 7 SEPTEMBER 12
MAY 23 NOVEMBER 21
JULY 18 DECEMBER 12
St. Paul's Hospital Scleroderma Combined Clinics
1081 Burrard Street
Vancouver, BC V6Z 1Y6
Scleroderma patients in British Columbia are privileged to have access, by medical referral, to a Scleroderma Clinic, the only of its kind in western Canada. Our St. Paul's Hospital Clinic services continue to grow, with Dr. Jim Dunne in charge. A welcome recent addition to the team is Dr. Chris Ryerson, whose specialty is Pulmonary Fibrosis. The Clinic evaluates and treats patients from all areas of the province. Dr. Dunne treats many people with severe or catastrophic Raynaud's diseases, and continues to work on angiogenisis with UNBC professor, Dr. Kevin Keen and partners. He is also involved in the SCOT and DETECT studies, and is pursuing the opportunity to cooperate with the iCapture Centre in fibrosis studies at St. Paul's.
The Scleroderma Clinic has now partnered with Dr. Pearce Wilcox and the Pacific Lung Health Centre (www.pacificlung.com) for those with pulmonary issues. Drs. Dunne and Wilcox are following over 100 patients in their combined lung/rheumatology clinic. There is a quarterly combined PAH clinic with VGH Drs. Levy and Swiston for those with pulmonary hypertension involvement. The combined lung/rheumatology clinic is engaged in several areas of research, including research into the mechanisms of scleroderma, the risks of progression, and evaluation of new potential therapies.
Dr. Thomas Goetz is at the helm for hand and joint issues (firstname.lastname@example.org). Treatment or surgery for ulcerated hands/elbows and restricted joint movement, common occurrences in scleroderma, is available. Dr. Goetz removes calcium using the same methods pioneered by Dame Professor Carol Black's unit in London (UK).
When It's Urgent
Scleroderma is not predictable. If you have a sudden change, or even if you have recently been seen for a flare that remains unrelenting, you or your legally designated representative may contact the Clinic’s coordinator, FranSchooley. If you are hospitalized at St. Paul’s, with the correct permissions in place, Fran may be a resource or an advocate for you. If you are hospitalized elsewhere in the province, also with the correct permissions put into place, it may be possible for health professionals at the Scleroderma Clinic to offer supportive information to your medical team, should they wish to confer. Messages for Fran can be left at 604.806.8818. Press “2” at the prompt.
For doctors only:
Referrals may be directed as follows:
Dr. James Dunne - Scleroderma Clinic:Fax: (604) 732-4984Tel: (604) 732-4993
Pacific Lung Health Centre:Fax: (604) 806-8839
Tel: (604) 806-8818
Sandman Hotel's Downtown Vancouver Locations Initiative Renewed for 2015 in Support Our Association, Members, Families and Friends
The SABC is pleased to announce the renewal of a two-year sponsorship agreement with the Sandman Hotel Group's two Downtown Vancouver locations, and welcomes the news that the Sutton Place Hotel has joined this special initiative to benefit of our members who attend the St. Paul's Scleroderma Clinic and to our Association as well.
Many of our members come into Vancouver from around the province to visit the Scleroderma Clinic at St. Paul's hospital, and require accommodation while they are in town. Others may live in the lower mainland, but find it helpful to stay closer to the Clinic on occasion. Thanks to this unique agreement, the Sandman Suites on Davie, the Sandman Hotel Vancouver City Centre and, new in 2013, the Sutton Place Vancouver hotel will offer our members, friends & families their best available rate, and will also donate a 10% commission for each room night sold, year round, to the Scleroderma Association of BC. The SABC will, in turn, use the funds received to continue supporting the Scleroderma Clinic at St. Paul's hospital.
How To Book:
In 2015, the SCLERO corporate code expands to provide the Best Available Rate at any Sandman location in Canada, in addition to both downtown Vancouver locations. Booking is simple! Visit http://www.sandmanhotels.com/ and go to "Book Your Stay". Enter the location you wish, your arrival and departure dates, etc. In the "Access Code" section, choose the "Corporate Code" option and enter our code: SCLERO. Then proceed with the remainder of your booking. "The SABC offers its heartfelt thanks to the Sandman Hotel Group for their ongoing support, and to Pamela Banda at Sandman and Denise Kostash at Sutton Place for their special efforts on our behalf."