SABC Cheque Presentation to St. Paul's Hospital
SABC recently presented the St. Paul's Hospital Foundation with a cheque for $42.903.80. This represents 100% of the donations raised for the 5th Annual Scleroderma Ride for Research. A Big Thank You!
We were pleased to represent all of you (as the organizers of the event) and the Scleroderma Association of BC (as President and Treasurer) in presenting the cheque to Drs. Dunne and Wilcox of the Scleroderma Clinic at St. Paul's Hospital. Unfortunately, Kevin Keen of UNBC was unable to attend.
This amazing support has allowed for continuation of the ground-breaking "proof of concept" genome study of scleroderma biomarkers into the next phase. They have already starting analyzing 4 scleroderma patient’s bloodwork! We believe this study is a strong step on the path leading to our ultimate goal - finding a CURE.
Next year's ride is already in the planning and we look forward to your continued support in sharing our message about scleroderma and raising much needed funds for continued research and treatment options.
2014 Christmas Party
Despite the bitter cold, a warm welcome awaited two dozen of our members, family and friends at our Christmas luncheon held November 30th at the Old Spaghetti Factory in New Westminster. We got the holiday season off to a great start by catching up with old friends and welcoming some new faces. The room was abuzz with the sounds of happy conversation. President Rosanne Queen launched the festivities, our cofounder Joan delighted everyone by reading one of her special poems, and everyone went home with a prize and a goody bag.
Volunteer Tracie & Member Donna SABCA warm welcome to all by president Rosanne QueenGifts and Goodies for All!
Allies in Health: 6th Annual Community & Patient Fair
Robyn Fox, Dianne McPhee, Doreen Lassam, Grant Dustin, Rosanne Queen, Arlene Burkhout, Donna Gervais, Suzanne Gavin, Melissa Patton
The 6th annual 'Health Sciences Fair' took place on October 29th in the Health Sciences Mall at UBC. More than 40 health organizations and agencies participated. The event is an excellent opportunity for students studying in a wide range of health science disciplines to learn about community resources and to speak with patients and others. Our volunteers were delighted to help them learn about scleroderma, and were kept busy! SABC board members Dianne McPhee again participated in the Fair's planning process and organized our SABC team of volunteers while Melissa Patton again assisted fair organizers with the overall set up for the day. Both the SABC & UBC were grateful to Pam Banda and Sandman Hotels for supporting the event once again.
Once again our booth was well attendedDemonstrating differences in "sclero" hands Similarity? All willing to help out!Newsletter editor Grant Dustin, Pamela Banda of Sandman Hotels & volunteer Doreen Lassam
Scleroderma Society of Canada 15th Annual Conference
The Scleroderma Society of Canada holds its AGM and Conference in the fall of each year in different cities across Canada, thus affording the opportunity for different segments of the population to more easily attend, and to access the expertise and experience of those in the local scleroderma community. Under the very capable leadership of Maureen Sauvé, the SSC continues to develop as a significant force for scleroderma interests in Canada, and beyond
Centre photo: Retiring & Current SSC Board Members, Rear L-R:
M. Richard, H.Goerzen, J. Lewis Anderson, C. Fortune, M. Patton, S. Haslam, L. Goulet, G. Little
Anna McCusker, SSC Executive DirectorScleroderma Assn Manitoba Pres. Marion Pacy & Maureen SauvéSSC/SSO President Maureen Sauvé with SABC Vice Pres. Bob Buzza
In the words of President Sauvé in her report to this year's meeting, 'The past year the Scleroderma Society of Canada continued to strengthen its national presence and outreach to Canadian patients, families and healthcare professionals, while at the same time, expanded our international presence as one of the world's leading scleroderma patient advocacy groups.' Conference delegates were introduced to recently appointed SSC executive director Anna McCusker, who spoke warmly about embracing her new role.
Joan, Bob, Ric & Tammy, Doreen & Melissa The Scleroderma Association of Manitoba hosted this year's conference, held in Winnipeg on September 19-20, 2014. SAM president Marion Pacy, their wonderful team of volunteers put together a well-organized conference that was attended by delegates from across the country. SABC board member Melissa Patton attended in her capacity as an SSC Director and Joan Kelly was a delegate. Thanks primarily to air miles donations and room-sharing, Bob Buzza & his daughter Robyn Fox also attended as reps. Other BC members attending independently were Cheryl Brown (Terrace), Doreen Lassam (Nanaimo) and her daughter Tammy Raynor with husband Ric. (Quesnel). Joan and Bob were warmly recognized during the meeting for their combined total of 60 years' service as scleroderma advocates. Melissa was re-elected as a national Director.
Eighteen unusually well-qualified speakers from fields as diverse as rheumatology, nutrition, vasculopathy, speech pathology, naturopathic medicine, trauma, pharmacy, and disability tax credits made presentations. Conference summaries, including content of speakers' presentations can be found here, and are well worth a visit: http://www.sclerodermamanitoba.com/2014-conference-program--presentations.html
One of the most effective and moving sessions involved a panel of five scleroderma patients. Each briefly described how the disease has affected and is affecting her. Questions and comments from the audience were then invited, which resulted in some truly wonderful and helpful exchanges. The SABC's 2015 AGM & Education Day will offer a similar panel.
The 2015 national meeting will take place in Hamilton, Ontario September 19-20. BC patients & their loved ones are invited and welcome to attend. Check here for updates:
SABC DONATES $24,937 TO SCLERODERMA RESEARCH AT ST. PAUL'S HOSPITAL
Denise Kostash, Rosanne Queen, Dr. J. Dunne, Dr. P. Wilcox, David Queen, Amanda Wooton
"Scleroderma Ride for Research" organizers Rosanne and David Queen (who also serve as the SABC's president and treasurer), and "Spencer Skate for Scleroderma" host Denise Kostash were delighted to present the proceeds of this year's events, totalling $24,937 at a ceremony held recently with the St. Paul's Hospital Foundation. Our donations were most gratefully received by Scleroderma Combined Clinic heads Drs. Jim Dunne and Pearce Wilcox, and St. Paul's Hospital Foundation representative Amanda Wooton.
3rd ANNUAL SCLERODERMA RIDE FOR RESEARCH
The third annual 'Scleroderma Ride for Research' took place on June 15th and was again a very successful event for fundraising and promoting greater awareness of the disease. Thanks to the hard work and dedication of event organizers Rosanne and David Queen, and their wonderful group of volunteers, a fantastic total of $21,746 was raised to supports scleroderma-related Raynaud's research at St. Paul's hospital. The SABC extends a big THANKS to them, the gang who organized the delicious pot luck post-ride picnic, and to all participants (about 45) and supporters of all ages.
We hope our members, friends and family will join us for our 4th Annual Scleroderma Ride for Research, which will be held once again in beautiful Stanley Park the morning of June 21st, 2015 – and enjoy our picnic potluck to follow.
30th ANNIVERSARY SABC ANNUAL CONFERENCE HIGHLIGHTS
The SABC annual conference and AGM was a noteworthy success. Held on June 6 & 7 at the Best Western Abercorn Inn in Richmond, this event marked the 30th anniversary of the SABC. Fifty SABC members, friends, family and newcomers, as well as special guests from the medical, research, fundraising and affiliated organizations also enjoyed a varied and informative program, as well as the opportunity to visit and share stories with others of the scleroderma community.